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Bloorview Research Institute

Scientist Profiles

Name: Barbara Gibson

Title: Scientist

Theme: Participation


Ph.D., Collaborative Program in Bioethics, Collaborative Program in Health Care Technology and Place, Institute of Medical Science, University of Toronto
M.Sc., Collaborative Program in Bioethics, Institute of Medical Science, University of Toronto
Bachelor of Medical Rehabilitation (Physical Therapy), University of Manitoba

University Position:

Assistant Professor, Department of Physical  Therapy, University of Toronto

Research Interests:

Social and ethical dimensions of disability and rehabilitation with children, youth and young adults. Critical approaches to qualitative research. Critical disability ethics.

Current Funding:

Title: WALK: Why Ambulation Learning for Kids?
Role: Principal Investigator
Agency: Social Science and Humanities research Council (SSHRC) Research Development Initiatives (2008-2009, $35,351.00)

Title: There’s no place like home: What constitutes an “adequate” home environment for younger disabled adults?
Role: Co-Principal Investigator
Agency: CIHR Catalyst Grant: Ethics (2008-2010, $92,144)

Title: Assessment of Children’s Capacity to Consent for Research: A Descriptive Qualitative Pilot Study of Researchers’ Practices and REBs’ Expectations
Role: Principal Investigator
Agency: Bloorview Research Institute Seed Grant (2008-2009, $ 24,926)

Title: University of Toronto Canadian Program of Research on Ethics in a Pandemic (CanPREP): Whose risks, whose duties, and what priorities?
Role: Co-Investigator
Agency: CIHR Team Grant: Pandemic Preparedness - Influenza Biology, Vaccines, Ethics, Legal and Social Research (2008-2011, $1,500,000)
University of Toronto Canadian Program of Research on Ethics in a Pandemic (CanPREP): Whose risks, whose duties, and what priorities?

Selected Peer-Reviewed Journal Publications:

1. Gibson B.E., Brooks, D., Dematteo, D., King A. (In press, May 2009) Consumer-directed personal assistance and ‘care’: perspectives of workers and ventilator-users, Disability and Society, 24 (3).

2. Gibson BE, Zitzelsberger H, McKeever P. (In Press, May 2009) “Futureless” persons: Shifting life expectancies and the vicissitudes of progressive illness, Sociology of Health and Illness.

3. Gibson B.E., Darrah J., Cameron D., Hashemi G., Kingsnorth S., Lepage C., Martini R., Mandich A., Menna-Dack D. (In press) Revisiting Therapy Assumptions in Children’s Rehabilitation: Clinical and Research Implications. Disability and Rehabilitation.

4. Wiles, R., Cott C., Gibson B.E., (2008) Understanding hope and illness: A narrative literature review of qualitative research on hope, expectations and recovery, Journal of Advanced Nursing 64(6), 564-573

5. Brooks, D., Gibson B.E., Dematteo, D. (2008) Perspectives of Personal Support Workers and Ventilator-Users on Training Needs. Patient Education and Counseling. 71: 244-250

6. Gibson B.E., Young N.L., Upshur, R.E.G, McKeever, P. (2007) Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy, Social Science and Medicine. 65: 505–517

7. Gibson B.E., Upshur, R.E.G, Young N.L., McKeever, P. (2007) Disability, technology and place: social and ethical implications of long-term dependency on medical devices, Ethics, Place & Environment. 10(1): 7-28.

8. Gibson B.E. (2006) Disability, connectivity and transgressing the autonomous body. Journal of Medical Humanities. 27:187–196

9. Gibson, B.E. (2005). Co-producing video diaries: The presence of the “absent” researcher. International Journal of Qualitative Methods, 4(4), Article 3.

10. Gibson, B.E. (2001) Long Term Ventilation for Patients with Duchenne Muscular Dystrophy: Physicians Beliefs and Practices. Chest 119: 940-946.

Contact Information:
Bloorview Research Institute,
Bloorview Kids Rehab
150 Kilgour Road
Toronto, Ontario M4G 1R8

Tel: 416-425-6220, extension 3324

Department of Physical Therapy
University of Toronto
160-500 University Ave
Toronto, ON M5G 1V7
TEL: 416-978-1819

barbara.gibson at utoronto dot ca* (See note below)

Note: Copy the above e-mail address into the To field of your e-mail message and reconstruct the e-mail address by removing the spaces and replacing the “at” and “dot” with the proper symbols (@ and .) respectively.

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